Tue 2 Oct 2007
Nighttime is a time for my mind to wander and scare me, as the lack of visibility propagates my emotional imagination. That being said, I’m still up right now because I can’t stop thinking about my visit to my parents’ Sunday night.
I’d gone alone, as Mr. W stayed to fix an issue with his son’s computer. After admiring the Alexandrite ring they’d bought me in Hawaii (which they still insist is a gift and I still insist is a loan), my mom said, “Cindy, I have bad news for you.” While we were in Hawaii having the time of our lives, my mom received the diagnosis from her doctor that she has liver cirrhosis. Her eyes reddening, she watched me carefully for my reaction. I didn’t react. To her, it’s a death sentence as her father passed away from that. But that was over three decades ago in a small inadvanced island, and he was a heavy drinker and a smoker, while my mother does not have either risk factor and is in a country with better medical facilities. To me, it is an early diagnosis so I do not see this as terminal news. To her, cirrhosis is watching her father cough up blood and waste away painfully within 6 months in a hospital bed. To me, cirrhosis is a disease that modern medical science knows how to stop, even though the present damage to her liver may not be reversable. To me, she has luckily been doing everything right in her attempt to help my father’s hypertension — dropping sodium intake, reduction of pain-reliever pill-popping, nightly walking around the hilly neighborhood with my dad, virtually zero alcohol consumption. But to her, she is frustrated that she’s been doing everything right and she still received this diagnosis. To me, the diagnosis identifies the problem for us so that we can immediately work on the solution. She’d taken the last week off to recover emotionally from the news, and had called her mother, who cried with her on the phone. She will not see tears from me, because I will show her nothing but faith that we are now on the right track to fix this, and that this is not the end. I think she felt a little better after we talked about my views on this.
Despite her red eyes clearing up, she nonetheless led me upstairs and showed me where she kept all the bank account books, legal paperwork, important documents. She’d spent the week taking photos of all the valuables she had in the house, then putting those photos in an album with price tag labels so that if I should decide upon their death to sell the items, I would know their approximate monetary value. She said half sheepishly that my father had called her crazy for going this far, saying this kind of preparation is unnecessary and that she was being ridiculous. I told her that it’s okay, despite the fact that I’m sure it’s unnecessary, I understood that sometimes having your affairs squared away just makes you feel better and rest more comfortably, because that’s still another important and big thing done.
After getting back, I emailed her to tell her that I was thinking on the drive home that maybe she’d expected me to react more strongly, to cry, to panic, and explained that my lack of panic does not mean I do not care, but that I don’t feel we are at a stage for panic. I reiterated how I feel she’d unknowingly and luckily given herself the best chance by her current clean lifestyle, and we’ll figure this out very soon. She wrote back that she knows I do care, but that the clean living is apparently not enough, so what more could she possibly do or change? She’s feeling helpless. I’m trying not to let myself feel helpless. I need to research how to get her white blood cell count up, her immune system up, and her platelets up. She’d always had low blood pressure, and while there, she had some major sciatica pain when she got out of her seat that prevented her from being able to move, and my dad had to help her back into her chair as her face crumpled and her shoulders shook from the pain and effort. A heating pad helped relieve most of the pain, and I told her she should stretch her hamstrings and leg muscles when she’s not in pain and after their nightly walks when her legs are warmed up, showed her a few ways to do it, explained that her sitting for long periods of time and her sleeping on her side in fetal position plus her poor circulation leads her leg and hip muscles to tighten up, pulling on the sciatic nerve. But secretly I’m thinking that maybe she is already dealing with edema in her legs due to the liver not performing at its peak right now.
Tonight I’m thinking of how my mother does all the cooking and cleaning and bills and, well, everything. How helpless my father would be without her. I remember my mother going back to Taiwan to visit her mother when I was in the third grade, and my dad and I had instant ramen for two weeks. Occasionally in those 2 weeks my aunt would bring by some homemade food, but my dad basically did not cook. I’m thinking about how my mother makes all my dad’s medical appointments, keeps his pills straight, manages the things he should and shouldn’t eat, like taking away the soy sauce and MSG, and bringing him plates of chopped fruit. I’m thinking of all the things I haven’t learned from her, like her amazing red-roasted beef stew noodle soup, her won tons made from scratch, how she felt when she first met my dad. I’m thinking of all the things I haven’t given her, like more affection, a wedding date, a grandchild.
And now I’m crying.
And now I feel bad, but this is not about me. Not that I believe that discovering your moms illness is fatal, but realizing what you want to learn from your mother, and what you can do to show her how much you love her, will only strengthen your mother/daughter relationship. Imagine how much closer you can become with your mother by spending more time with her and bonding over little things such as traditonal cooking, showing her stretches, discussing wedding plans, etc. etc. I hope everything works out well, my prayers will be there for yor your whole family
*Giving you a BIG hug*
You Cindy you have such a gret head on your shoulders and I admire the way you always look at the brigther things in life. Your Mom probably appreciated that you didn’t loose it and gave her moral support and made her look at options that she may have not been thinking of.
It’s hard to start to think that your parents are not immortal and head down that thought process. I think she would enjoy teaching you how to make red-roasted beef stew!
Hang in there!
i think you have the right approach – remain level headed and learn about all the things you can do to remedy the situation. i happen to have a close friend who had very severe liver problems. however with medication and taking care of herself (she became vegetarian) she is now normal, has two kids, a loving husband and no long has to take medication! your mom has taken care of herself, caught it early, and has good medicine available to her. All things sound good!
i’m sure your mom loves you tons and thinks only of the joys you have brought her. i agree with all the previous comments, it’s always good to spend quality time with the parents. learn all the things you want to from her and she will be happy for every second she spends with you.
🙁
I can also understand why she would get her try to get her affairs in order… and you’re right, she’ll be more comfortable knowing that they are in order.
And you’re right … medical advances have made leaps and bounds since your grandfather passed away.
Hang in there..
Thanks for the support and advice, you guys. You’re all right, I should just strengthen the bond now, it’s not like it’s too late or anything, and there’s no certainty that this is a fatal thing. (Altho some say ‘life’ itself is fatal.)
It’s a good thing all my hawaii posts are time-bombed, cuz I don’t feel like working on yippy skippy posts and photos right now.
This is the first time I had a chance to look at your world in awhile.
The photos are beautiful.
And as I sit here typing this while watching my grand daughter sleep, my eyes swell with tears over the news about your mom. From my point of view, as a mother and now a grandmother, I understand the sadness your mother feels realizing she is not invincible and life is short. I think we moms believe we will always be here for our children.
Take care of yourself and your mom. My heart and prayers are with you.
Thank you. I guess you’re off this week. Enjoy the time with your new grandbaby. 🙂